One woman's God-sized view of suffering
As I wait for my guaifenesin and salicylate-free products to arrive in the mail so I can begin the Guaifenesin Protocol, I am face to face with something many of us know well: suffering. The constant pain and fatigue wears us down in a way our family members have a difficult time understanding.
Although I do not like my circumstances and I've cried out to God many times in prayer, my condition remains.
"When God was pleased to call me to Christ's mission, which is a mission of peace and love to the sinful and the wandering, He taught me that I must be willing to be, in some sense, a partaker in Christ's sufferings." by Madame Guyon
I am reminded of a beautiful poem I heard years ago by Madame Guyon. Madame Guyon wrote this poem while in prison in The Bastille. The Bastille held the reputation of being the most horrible prison on earth. There Madame Guyon spent four years in solitary confinement. When she died in 1717, her family found this poem she wrote while in The Bastille.
A little bird am I,
Shut from fields of air
And in my cage I sit and sing
To Him, who placed me there,
Well pleased a prisoner to be,
Because my God, it pleaseth Thee,
Naught have I else to do;
I sing the whole day long;
And He whom most I love to please,
Doth listen to my song.
He caught and bound my wandering wing,
And still He bends to hear me sing.
My cage confines me round;
Abroad I cannot fly,
But though my wing is closely bound
My heart's at liberty.
My prison walls cannot control
The flight, the freedom of the soul.
Oh! it is good to soar,
These bolts and bars above,
To Him whose purpose I adore,
Whose providence I love,
And in Thy mighty will I find
The joy, the freedom of the mind
Shut from fields of air
And in my cage I sit and sing
To Him, who placed me there,
Well pleased a prisoner to be,
Because my God, it pleaseth Thee,
Naught have I else to do;
I sing the whole day long;
And He whom most I love to please,
Doth listen to my song.
He caught and bound my wandering wing,
And still He bends to hear me sing.
My cage confines me round;
Abroad I cannot fly,
But though my wing is closely bound
My heart's at liberty.
My prison walls cannot control
The flight, the freedom of the soul.
Oh! it is good to soar,
These bolts and bars above,
To Him whose purpose I adore,
Whose providence I love,
And in Thy mighty will I find
The joy, the freedom of the mind
3 comments:
That poem is poignant. We should all strive for such a love of our Maker the way she has.
Wow, what an amazing poem. Thanks for posting it, something we should all strive to do!
This will give you your Life back!! When u have fibromyalgia/CFS/M.E
have fibromyalgia for over 10 years as well everything made me bedridden in exstream pain everyday nonstop for over 10 years so i know how you feel
i have tried very so called Cure in a Bottle/Tin and i have tried pain meds pain meds only cause rebound pain and thats why they dont work they didnt even touch my pain One cm! i have done exstream Reserch intto everything under the sun for many years and days and hours and i have seen many doctors and they all say the same thing!! WE CANT DO ANYTHING FOR YOU!!! THE NHS CANT SO ANYTHING FOR FIBROMYALGIA/CFS/M.E!!
So i have come across a Treatment that i found all on my own afear many years hunting and reserching and i found a very Good Doctor who has Fibromyalgia!!/Cfs/M.e and hes family have Fibromyalgia/Cfs/M.e he has been studying and reserching for over 50 years now he knows best and he has founded this treatment that can give you your life back
He has Reverse hes fibromyalgia and he has been pain free for over 30 years!
he Runs for 3-6miles a day and plays tennis and hes 81 years young and still works 5 days a week as a Doctor helping people get better with Fibromyalgia/cfs/m.e he has helped over 25,000 people get better with fibromyalgia/cfs,Me in hes private Doctors surgery in the USA
There is No cure for fibromyalgia/cfs/me but there is hope as you can get better with the Guai protocol i still have to limt my life and i have to pace my self out if i aint careful then i will be bedridern for life BUT NOW I can have a part time life now as before the treatment i didnt have a Life!! i know i will get good days and im postive person now and now am going forward and not backwards forward is getting better and backwards is waiting around for the pain to go away and getting worse and worse to the point that i would have to be in a wheelchair going forward is doing something about it and going on the Guai protcocol and working by backside of getting by life back am getting there slowly but thats better then never the lord will not help you if u will not help your selfs !
am here to help you if you want help in getting better am here for you as am healing slowly and i havent been so happy in my life
I'm on the Guaifenesin Protocol for A YEAR now i have had 100 pain free days since i have been on the protocol its the best ever thing that i have done for my health !!!
Best thing to do is to read what your Doctor may not tell you about fibromyalgia by Paul St Amand, Md and Claudia Marek there are 2 on line support groups which have 1000s of members on heres the links to the support groups Uk one is
i have been at the point when i have been paralysed from head to toe for over a year i was sheer CONCRETE many times i have been not for a year though Thank goodness i have come from that to being about to have part of a life
What would you say if I told you that there's something that you can do to
help with your Fibromyalgia? What would you say if I told you that it would
benefit ALL of your symptoms? What would you say if I told you that there have
been at least fifty studies that show these benefits, and no (zero) studies
that show it doesn't help? What would you say if I told you that even low doses
are effective?
And then, if you looked interested, if I'd managed to get your
attention..what would you say if I told you that it had no side effects? couldn't hurt you?
That you could stop at any time without any withdrawal symptoms?
Would you be interested enough to read on?
What would you say, in the middle of all this debate about the expense of
guaifenesin and toothpaste costs--that it doesn't cost anything? That it's free?
Still reading? Well, keep reading... I'll tell you the answer if you promise
to read to the bottom of this post.
The answer is...............exercise.
Fibromyalgics have a hard time making energy. The energy stations in our
cells, the mitochondria, aren't very efficient. But, there's a way to make more
energy stations. Many, many more energy stations..........it's called
exercise.
Exercise your body and you'll get more energy, more strength, more stamina.
But there's more. Exercise your brain and you'll make more mitochondria there
as well. Even old old people can grow more of them. Do puzzles. Any kind of
puzzle. Make up puzzles and questions and estimate, calculate, read, do
quizes in Reader's Digest. It will help.
You'll release endorphins. And, get this...the cells that make endorphins
will make more mitochodria too. They'll make more endorphins. You'll feel
better. You'll feel better about yourself. And, you'll look better. No, you won't
turn into a 20 year old. You won't become Einstein. But you'll become the best
you --that you can be.
whos with me??????????????
START SLOW AND BUILD IT UP !!
the Guai protocol is Extremely essential to getting your life back now exercise is 10000& essential to getting better and diet
Diet is very important to our Recovery from Fibromyalgia /CFS/M.E
as the cause of fibromyalgia is to many phosphates in our blood stream and when our body has to many phosphates they get thowen into our muscle cells and then when we eat crabs , they trun into sugar, the insulin deposits the sugar along with phosphates into our cells. So everytime we eat carbs we are counteracting the exact biochemical thing that the Guaifenesin does ; Guaifenesin takes the phosphates out of our cells, carbs put phosphates into the cells so thats why when we eat crabs Sugar in any form and junk that causes etc phosphates to go into our cells then the ++ fibromyalgia pain
Carbohydrates- Chemicals made up of carbon, hydrogen, and oxyen that provide the body with one of its tow main sources of energy( the other fats) . Sugars and starches are carbohydrates. Although we usally read about two types of carbohydrates, simple and complex there are actually 3 classifications: monosaccharides( Glucose, galactose,frucose), Disaccharides( sucrose,lactose, maltose) and Polysaccharides ( starch, cellulose) ingested carbohydrates rise the blood sugar, and the pancreas responds with release of insulin
i know that am healing and i will do anything in my power to get my life back and i will never give up am here to share this good news to you all that there is hope and i can help you all as i know how much you suffer with this evil illness i have made a few videos about the treatments that am on that are on myspace
page At www.myspace.com/LDS_Nicole
Before the Treatment i couldn't do anything!
i was Housebound i was in Ex stream pain forever! small things made me bedridden!!
OK i started the Guaifenesin Protocol in Aug 2006 and its the best ever thing that i have done!! i have never had an pain free min ever in my life i have never had a Good day in over 10 years
In Aug i had my 1st ever pain free 7 hours worth i was Pain free i was crying with joy!! i couldn't believe it!!! i was smiling all day long! that was in Aug 2006 and i have had pain free hours and days and even weeks since Aug till now!! its not quick fix but it will make you feel better and you will get ya life back with in time .
This will give you your Life back!! When u have fibromyalgia/CFS/M.E
have fibromyalgia for over 10 years as well everything made me bedridden in exstream pain everyday nonstop for over 10 years so i know how you feel
i have tried very so called Cure in a Bottle/Tin and i have tried pain meds pain meds only cause rebound pain and thats why they dont work they didnt even touch my pain One cm! i have done exstream Reserch intto everything under the sun for many years and days and hours and i have seen many doctors and they all say the same thing!! WE CANT DO ANYTHING FOR YOU!!! THE NHS CANT SO ANYTHING FOR FIBROMYALGIA/CFS/M.E!!
So i have come across a Treatment that i found all on my own afear many years hunting and reserching and i found a very Good Doctor who has Fibromyalgia!!/Cfs/M.e and hes family have Fibromyalgia/Cfs/M.e he has been studying and reserching for over 50 years now he knows best and he has founded this treatment that can give you your life back
He has Reverse hes fibromyalgia and he has been pain free for over 30 years!
he Runs for 3-6miles a day and plays tennis and hes 81 years young and still works 5 days a week as a Doctor helping people get better with Fibromyalgia/cfs/m.e he has helped over 25,000 people get better with fibromyalgia/cfs,Me in hes private Doctors surgery in the USA
There is No cure for fibromyalgia/cfs/me but there is hope as you can get better with the Guai protocol i still have to limt my life and i have to pace my self out if i aint careful then i will be bedridern for life BUT NOW I can have a part time life now as before the treatment i didnt have a Life!! i know i will get good days and im postive person now and now am going forward and not backwards forward is getting better and backwards is waiting around for the pain to go away and getting worse and worse to the point that i would have to be in a wheelchair going forward is doing something about it and going on the Guai protcocol and working by backside of getting by life back am getting there slowly but thats better then never the lord will not help you if u will not help your selfs !
am here to help you if you want help in getting better am here for you as am healing slowly and i havent been so happy in my life
What causes Firbromyalgia/CFS/M.E
We believe it is an inherited trait and that from birth phosphates very slowly build up in your tissues. At puberty and other accelerated growth times your body uses more of the phosphate you ingest. The build up might completely stop at that time. However, at some point, depending on your genetic trait, you become symptomatic: ie the phosphates have built up to the point where they cause an impediment in making energy. Eventually this lack of energy, dysenergism, causes our symptoms.
You will reverse one year of build-up with about 2 months of guaifenesin. If you stop taking guaifenesin when you stop feeling symptoms the build up will begin again and in time your symptoms will come back. That's why we stay on guai for life despite the fact that we feel better!!
'Why Guai?'.
'Why is this treament so much better than all the other things?'
People will then often tell us about their experiences with acupuncture,
homeopathy, physio, herbal remedies...
We usually reply along the lines that the protocol:
'doesn't just treat symptoms',
'reverses not cures the disease',
'gets to the root of the problem and not just covers things up'
Some folk are interested in the whys and wherefores - others just glaze over
and change the subject.
What follows is an analogy that I have been working on for nearly 6 months.
I tried it out on my sister last Christmas and she seemed to like it. I
have also passed it to the US admin team and have received positive replies.
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This train of thought was started by, of all things, an advert on the TV for
a toilet cleaner. I think it might have been Domestos but not sure.
'All other loo cleaners simply bleach and therefore mask the stains in the
bowl. THIS one actually removes the unsightly limescale'. I am sure many of
you saw it.
I have worked on it a bit and, at John's suggestion, I have limited the
toilet aspect of the analogy. LOL!
I used to live in a hard water area. Thames Valley Water to be exact.
Excess limestone and other junk was disolved in my water. Limescale deposits
everywhere! My electric kettle had to be de-scaled regularly - if I forgot it
took forever to boil and was very wasteful of energy. Similarly my immersion
heater for domestic hot water also became very scaley and the water was not
as hot and frequently the thermostat burnt out - usually when I had just come
in from a particulaly cold and wet ride and desparately needed a hot bath and
to wash my hair! So this defect in the water was costing me in time and
money and was often very unpleasant.
Finally I got to the source of the problem. It was not that cheap but I
installed a water softener. This lovely little device sat below my kitchen
sink
beside the mains stopcock and as long as I fed it with the correct tablets
and set it to run every 2 to 3 days to flush through the system my whole
problem was solved. Somehow the limescale was able to pass through my entire
house without affecting me in any way! My kettle sang and boiled in no time,
my
immersion hot water heater lasted for YEARS - but there were so many other
benefits.
The toilet, once cleaned properly, stayed clean for longer with no stains in
the bowl (and the stains in the cistern gradually faded). The bath needed
less cleaning to remove the ring, no more bluey drips under the taps and all
the stainless steel gleamed in all baths, basins and sinks. The bathroom
tiles were much easier to keep clean.
Not only that, I needed less washing up liquid and wash powder (fuel for
cleaning dirty dishes and clothes). Plates and glasses sparkled and my clothes
were softer as they all were being rinsed in limescale free water!!
Similarly my hair needed less shampoo and was more manageable and my skin
also seemed to do better. The improvement to my hands may have been due to the
fact that I was able to use chemicals that were less harsh to clean the
bathroom and kitchen!
And all because I had tackled my hard water problem at source instead of
masking it as I had done for years!!
Those of you who also have lived in hard water areas will specially relate
to my problems in Bucks/Berks. If you are lucky enough to live in a soft
water area - Trust Me - it is not pleasant and very costly in time and
energy!!!
I do not think I need to labour the point. Guai tackles the problem of our
phosphate deposits at source. With Guai we get a regular 'flush' to clear
the excess phosphates from the blood stream - at which point the body seeks out
phosphates that may be stored and draws them into the blood stream so that
we can flush them out via the kidneys.
Just as my toilet cistern lost the nasty deposits over time - and no doubt
the unseen deposits in the pipes throughout my house - Guai can clear you of
the energy depriving deposits.
I'm on the Guaifenesin Protocol for A YEAR now i have had 100 pain free days since i have been on the protocol its the best ever thing that i have done for my health !!!
Best thing to do is to read what your Doctor may not tell you about fibromyalgia by Paul St Amand, Md and Claudia Marek there are 2 on line support groups which have 1000s of members on heres the links to the support groups Uk one is
i have been at the point when i have been paralysed from head to toe for over a year i was sheer CONCRETE many times i have been not for a year though Thank goodness i have come from that to being about to have part of a life
What would you say if I told you that there's something that you can do to
help with your Fibromyalgia? What would you say if I told you that it would
benefit ALL of your symptoms? What would you say if I told you that there have
been at least fifty studies that show these benefits, and no (zero) studies
that show it doesn't help? What would you say if I told you that even low doses
are effective?
And then, if you looked interested, if I'd managed to get your
attention..what would you say if I told you that it had no side effects? couldn't hurt you?
That you could stop at any time without any withdrawal symptoms?
Would you be interested enough to read on?
What would you say, in the middle of all this debate about the expense of
guaifenesin and toothpaste costs--that it doesn't cost anything? That it's free?
Still reading? Well, keep reading... I'll tell you the answer if you promise
to read to the bottom of this post.
The answer is...............exercise.
Fibromyalgics have a hard time making energy. The energy stations in our
cells, the mitochondria, aren't very efficient. But, there's a way to make more
energy stations. Many, many more energy stations..........it's called
exercise.
Exercise your body and you'll get more energy, more strength, more stamina.
But there's more. Exercise your brain and you'll make more mitochondria there
as well. Even old old people can grow more of them. Do puzzles. Any kind of
puzzle. Make up puzzles and questions and estimate, calculate, read, do
quizes in Reader's Digest. It will help.
You'll release endorphins. And, get this...the cells that make endorphins
will make more mitochodria too. They'll make more endorphins. You'll feel
better. You'll feel better about yourself. And, you'll look better. No, you won't
turn into a 20 year old. You won't become Einstein. But you'll become the best
you --that you can be.
whos with me??????????????
START SLOW AND BUILD IT UP !!
the Guai protocol is Extremely essential to getting your life back now exercise is 10000& essential to getting better and diet
Diet is very important to our Recovery from Fibromyalgia /CFS/M.E
as the cause of fibromyalgia is to many phosphates in our blood stream and when our body has to many phosphates they get thowen into our muscle cells and then when we eat crabs , they trun into sugar, the insulin deposits the sugar along with phosphates into our cells. So everytime we eat carbs we are counteracting the exact biochemical thing that the Guaifenesin does ; Guaifenesin takes the phosphates out of our cells, carbs put phosphates into the cells so thats why when we eat crabs Sugar in any form and junk that causes etc phosphates to go into our cells then the ++ fibromyalgia pain
Carbohydrates- Chemicals made up of carbon, hydrogen, and oxyen that provide the body with one of its tow main sources of energy( the other fats) . Sugars and starches are carbohydrates. Although we usally read about two types of carbohydrates, simple and complex there are actually 3 classifications: monosaccharides( Glucose, galactose,frucose), Disaccharides( sucrose,lactose, maltose) and Polysaccharides ( starch, cellulose) ingested carbohydrates rise the blood sugar, and the pancreas responds with release of insulin.
there is also an illness that overlaps Fibromyalgia which is called Hypoglycemia
Which 40% of fibromyalagia people suffer with and dont even know it!! you can get Hypoglycemia without having Fibromyalgia/Cfs.M.E and still not know you have it!
The Chronic Symptoms of Hypoglycemia
Are as follows:
: Fatigue, Insomnia,( not sleeping)
: Nervousness, Depression, irritabillity.
:Dizziness, faintness
: Blurring of Vision
: Ringing ears
; Gas abdominal cramps, Diarrhea
: Numbness/tingling of hands and feet, face.
: Flushing/sweating
; Foot/leg cramps
: Bitemporal or frontal headaches
:impaired memory and concentration
Acute Symptoms
: Heart pounding
:palpitations or heart irregularities
:Panic attacks
: Nightmares and severe sleep disturbances
: Faintness or syncope
Acute anxiety
: Hand or inner shaking tremor
:Sweating
:frontal headache or pressure.
Fibromyalgics with hypoglycemia must follow a low carbohydrate diet as prescribed, or they will not feel better, even when guaifenesin clears the lesions of fibromyalgia. Though not mandatory, fibromyalgics with carbohydrate craving will get a "jump-start" with similar dietary modifications for the first thirty days of treatment. Carbohydrates (sugars and starches) release insulin. This hormone not only induces kidney reabsorption of phosphate but also drives it into various cells and intensifies symptoms. Elimination of the following foods prevents the wide fluctuations of blood sugar that allows a surge in energy and lessens bouts of fatigue.
Foods to Avoid Strictly:
All alcohol, dried fruits, fruit juice, baked beans, refried beans, lima beans, barley, black-eyed peas (cowpeas), lentils, garbanzos, rice, bananas, pasta (all types), flour tortillas as in burritos, tamales, corn, potatoes, sweets of any kind including dextrose, glucose, hexitol, maltose, sucrose, honey, fructose, corn syrup, starch. Caffeine and alcohol
i know that am healing and i will do anything in my power to get my life back and i will never give up am here to share this good news to you all that there is hope and i can help you all as i know how much you suffer with this evil illness i have made a few videos about the treatments that am on that are on myspace
page At www.myspace.com/LDS_Nicole
Before the Treatment i couldn't do anything!
i was Housebound i was in Ex stream pain forever! small things made me bedridden!!
OK i started the Guaifenesin Protocol in Aug 2006 and its the best ever thing that i have done!! i have never had an pain free min ever in my life i have never had a Good day in over 10 years
In Aug i had my 1st ever pain free 7 hours worth i was Pain free i was crying with joy!! i couldn't believe it!!! i was smiling all day long! that was in Aug 2006 and i have had pain free hours and days and even weeks since Aug till now!! its not quick fix but it will make you feel better and you will get ya life back with in time .
The guaifenesin protocol
Fibromyalgia is a legitimate and common entity. It is a cyclic and progressive illness manifested by multiple symptoms that may last only a few days in the early stages but later are present continuously. The disease eventually affects multiple areas and bodily systems until patients simply cycle from bad to worse. There are no diagnostic laboratory tests for fibromyalgia.
Patients parade from one doctor to another and are often told that they have chronic fatigue, systemic candidiasis, myofascial pain, irritable bowel or vulvar pain syndrome. Physicians focus on symptoms germane to their specialty and often fail to perceive the much larger problem. Grouping a few symptoms while ignoring others leads to a medical dead end and incorrect diagnoses. The above-listed entities are actually symptoms of a much larger problem.
The American Academy of Rheumatology recommends searching for tender points from eighteen predetermined sites on the body to make a definitive diagnosis of fibromyalgia. So-called "chronic-fatigue" patients simply have higher pain thresholds. For this reason they do not complain of body aches or stiffness but focus mainly on their fatigue and cognitive impairments. Since pain perception varies greatly, we urge physicians to seek objective evidence instead of the purely subjective response to variably tender points. The confirmation of fibromyalgia is far more secure when using our method of palpation that we call mapping (see below).
Fibromyalgia has no set symptoms and many combinations from the following list are interwoven:
Central Nervous System: Fatigue, irritability, nervousness, depression, apathy, listlessness, impaired memory and concentration, anxieties and suicidal thoughts. Insomnia and frequent awakening due to pain result in non restorative sleep.
Musculoskeletal: Pain and generalized morning stiffness could arise from muscles, tendons, ligaments and fascia of the shoulders, neck, entire back, hips, thighs, knees, ankles, feet, inner and outer elbows, wrists, fingers, and chest. Injured or old operative sites are commonly affected. Though fibromyalgia is described as a "non-articular" disease many know better: Joint pains with or without swelling, redness and heat are frequent. The litany includes foot or calf cramps, numbness and tingling of the face or extremities.
Irritable Bowel: (Often called leaky gut, spastic colon or mucous colitis). Symptoms include nausea (often brief, repetitive waves), indigestion, gas, bloating, pain, cramps, constipation alternating with diarrhea and sometimes mucous stools.
Genitourinary: Common are pungent urine, frequent urination, bladder spasms, burning urination (dysuria) with or without repeated bladder infections and interstitial cystitis. Vulvodynia (vulvar pain syndrome) includes vaginal spasms, irritation of the vaginal lips (vulvitis) or opening (vestibulitis) and painful intercourse (dyspareunia). It typically mimics a yeast infection but without the cottage-cheese discharge. Intense PMS and uterine cramping are common. Symptoms of fibromyalgia are worse premenstrually.
Dermatological: Various rashes may appear with or without itching: Hives, red blotches, itchy bumps or blisters, eczema, seborrheic or neurodermatitis, and rosacea. Nails are often brittle and of poor quality and hair falls out prematurely. Strange sensations are common such as cold, heat (especially palms, soles and thighs), crawling, electric vibrations, prickling, super-sensitivity to touch, and flushing that is sometimes accompanied by sweating.
Head, Eye, Ear, Nose, and Throat: Headaches (migraines), dizziness, vertigo (spinning) or imbalance; dry eyes as well as itching and burning with or without sticky or crusty discharge upon awakening; blurred vision; nasal congestion and post-nasal drip; painful, burning tongue, mouth and abnormal tastes (scalded, bad or metallic); ringing in the ears (tinnitus) or lower-pitched sounds; ear and eyeball pain; sensitivity to light, sounds and odors.
Miscellaneous Symptoms: Weight gain; low grade fever; lowered immunity to infections; morning eyelid and hand swelling from fluid retention that gravitates to the lower extremities by evening where it stretches tissues causing the restless leg syndrome.
Hypoglycemia Syndrome: This is a separate entity. Thirty percent of female and twenty percent of male fibromyalgics suffer both conditions (fibroglycemia). Symptoms greatly overlap those of fibromyalgia, but sugar craving accompanied by tremors, sweating, anxiety, panic attacks, heart pounding, faintness, and frontal headaches, especially if hunger induced, are solid clues to the diagnosis. Hypoglycemics must follow a prescribed diet or recovery will not be complete even with the reversal of fibromyalgia. (See Hypoglycemia for more information.)
Trauma, infection or stress can aggravate or tip susceptible individuals into fibromyalgia but are not the basic causes. It is generally accepted now as an inherited disease. We have treated family members that spanned three generations including four two-year-olds as well as patients who became symptomatic only in their seventies. This age spread strongly suggests a multi-genetic disease in various combinations. Boys and girls suffer equally in the pre-puberty but females predominate (85% to 15%) thereafter. Though some gene-carrying men have few or no symptoms, inheritance is possible from either parent. The cyclic accumulation of symptoms begins earlier than patients suspect but can be elicited with a careful history. Forty percent of our patients, for example, recall "growing pains" in childhood that disappeared during the true growth spurt of puberty. Untreated fibromyalgia ultimately leads to a "tartar of joints" that we recognize as osteoarthritis.
Forty-six years ago, a patient taking a gout medication showed me that he could peel tartar (calcium phosphate) off his teeth with his fingernail. This observation indirectly led me to study an unrecognized systemic problem being reflected by deposits from the disturbed saliva. We now postulate that a defective metabolism, possibly a kidney enzyme, forces retention of phosphate, which gradually accumulates to detrimental levels in many tissues. This excess induces inadequate energy formation (ATP), cellular fatigue and malfunctions that explain all the symptoms of fibromyalgia. Our paper for interested professionals defends that theory.
We no longer prescribe gout drugs (uricosurics). We now use guaifenesin for fibromyalgia because it has no side effects and is even safe for children. It is marketed for respiratory mucus problems and is available without prescription in various strengths, though some brands may not be effective for fibromyalgia. Currently, we can only advocate three products: the long-acting 600 mg tablets 'Mucinex' and one compounded for the Marina del Rey Pharmacy as well as a 400 mg tablet that is free of contaminants from Pro Health. (see Web site: fibromyalgiatreatment.com) We begin patients with 300 milligrams twice a day for one week. Feeling distinctly worse suggests adequate dosage and patients may remain on that amount. This suffices for only 20 percent of patients; if symptoms do not worsen, we increase to 600 mg. twice daily. Reversal begins for 80 percent of patients at one of these two levels leaving 20 percent who will need more. During reversal, symptoms are usually intensified and new ones may be experienced. These are not side effects, but signal that reversal is underway. Better hours eventually cluster into days and finally weeks. During this subjective roller coaster ride, lumps and bumps soften, fragment and gradually clear. Recovery is more rapid than the time it took to develop the illness. Even genetically-slow responders, clear at least one year of metabolic debris every two months. Longer endured disease requires more time to restore. Newer lesions clear first and the oldest ones last.
The original description of fibromyalgia as "rheumatism with hard and tender places" has certainly been forgotten. Tender-point examination limited to a few preordained parts of the body has less value than our totally objective body mapping. We use our finger pads as though we were trying to iron out underlying tissue and thereby find the swollen places within muscles, tendons and ligaments. We record their location, size and degree of hardness on a body caricature that becomes a baseline for future comparisons. Unless swollen, the purely subjective tender spots are excluded in mapping. Subsequent examinations and patient inputs readily determine drug dosages and sequential disease regression. We hide previous maps until we complete the examination and only then compare them to confirm progress. The most important site for confirming the diagnosis and assuring future success is the left thigh. The outside of the quadriceps muscle (Vastus lateralis) and the front part (Rectus femoris) are involved in 100% of adults and clear within the first month upon attaining adequate dosages.
Ignoring the following will guarantee treatment failure. All salicylates including aspirin completely block the benefits of guaifenesin for fibromyalgia. This occurs at a kidney site—something well documented with uricosuric gout medications. Salicylates are often found in pain medications. Less appreciated is the fact that all plants manufacture them in quantities that vary with genus and from crop to crop. They are stored in bark, leaves, roots, and seeds where they serve to repair damage or as weapons against soil bacteria and fungi. Salicylates are readily absorbed through the skin and intestine when introduced from botanicals in cosmetics, herb derivatives in medications and supplements, sap or oil from plants, gels and extracts. Individual genetics determine ease of blocking but all patients should assume a high level of susceptibility and take no risks. New or replacement products should be carefully inspected for changes made by manufacturers. Items on Salicylate-free lists should be double checked for accuracy.
The following is a partial guide to natural and synthetic salicylates that must be avoided:
Medications: (1) Pain products containing salicylate or salicylic acid, for example, aspirin, Salflex, Anacin, Excedrin, Disalcid. (2) Herbal medications such as St. John's Wort, gingko biloba, saw palmetto, blue-green algae, Echinacea, or nonni juice; vitamin supplements with alfalfa, parsley, rose hips or bioflavonoids. (3) Wart or callus removers, many acne products and dandruff shampoos contain salicylic acid. (4) Pain creams, balms and lotions such as Ben Gay, Myoflex, Zostrix, Capsaicin or capsicum. (6) Medications such as Pepto Bismol, Asacol, Alka Seltzer or Urised.
Cosmetic and Topical Products: (1) Skin cleansers or exfoliants that use salicylic/ betahydroxy acid(s). (2) Hair shampoos, conditioners or sprays with plant derivatives. (3) Bubble baths and lotions with essential oils or plants such as aloe, ginseng, lavender; almond or grape seed oils etc. (5) Sun screens or tanning lotions with aloe, octisalate, homosalate, or meradimate. (6) Lipsticks or balms, Chapsticks or sunscreens with aloe, camphor, menthol, or castor oil. (7) Deodorants with castor oil. (8) Sticky plant juices or saps adhere to the skin while gardening or weeding (Patients should wear canvas gloves and avoid barefoot contact with grass). (8)Beware of tissues, toilet paper and baby wipes with aloe.
Shaving Aids: (1) Shaving creams with aloe, mint, menthol or mentholatum will block. (2) Razors with aloe strips adjacent to the cutting edge deliver salicylates through microscopic cuts. Vitamin E, lanolin, and baby Oil are all acceptable.
Oral Agents: (1) Most mouth washes contain mint, wintergreen or salicylate (Listerine, Scope). (2) Toothpastes contain salicylates, as well as fresh or artificial mint, often unlisted. Use Grace FibroSmile toothpastes, Personal Basics by Andrea Rose or the non-mint ones made by Tom's of Maine. Baking soda and/or peroxide provide good cleansing and whitening. The non-mint pre-brushing rinses are acceptable as are the Grace Fibrosmile Mouthwashes. (3) Use no lozenges, dental floss, breath fresheners or chewing gums with any mint flavor, including menthol, wintergreen, peppermint or spearmint. (Fruit/Cinnamon flavors may mask mint hidden by the stronger flavors.).
The word active ingredients should alert one to scrutinize inactive ones as well.
PHYSICIANS CANNOT BE EXPECTED TO RECOGNIZE OR KNOW ALL THE INGREDIENTS IN TOPICAL PREPARATIONS. DOCTORS WILL ASSUME GUAIFENESIN HAS FAILED IF PATIENTS DO NOT COMPLETELY PURGE SALICYLATES. IT IS YOUR RESPONSIBILITY TO FOLLOW OUR PROTOCOL EXACTLY.
Dictionaries help identify products. When calling manufactures check ingredients yourself because often personnel do not realize that plants make salicylates. Go to the web sites and reference books we have listed for assistance. This web site can connect you to a support group eager to help with updated safe-product listings, answer questions, and warn of pitfalls.
No diet is required for fibromyalgia since the liver alters food salicylates, but that capacity is overwhelmed by the mint family.
Do not use decongestants or cough medicines to get guaifenesin. There are potential side effects from various additives. Repeat: the drug is available without prescription but at variable prices and is no longer covered by insurance. Single ingredient guaifenesin has no side effects (rarely mild, but transient nausea) and no known drug interactions. Using it with salicylates causes no ill-effects, it simply negates the drug's effectiveness for fibromyalgia.
Pain medications such as acetaminophen (Tylenol), Ultram, Darvocet-N, Imitrex, non-steroidal drugs such as Advil, and Aleve, will not block guaifenesin. Though they do not block, we do not agree with the use of codeine, hydrocodone, oxycontin, morphine, and methadone that are frequently used to control pain at the cost of eventual addiction, something hardly acceptable when dealing with a chronic illness.
Our treatment is not for those lacking courage. It calls for patient skills and, hopefully, physician assistance. Remember, reversal of the disease reproduces past symptoms and may cause new or long-forgotten ones to re-surface. The intensity of these early cycles often causes concern during the initial weeks of treatment. Such symptoms are not guaifenesin side effects. Patients realize they were getting steadily worse long before starting our protocol despite medicinal Band-Aids used to mask symptoms. We offer hope to those with determination to try once more despite previous failures. This is a highly-effective protocol.
R. Paul St. Amand, M.D.
Assistant Clinical Professor Medicine
Endocrinology--Harbor-UCLA
Claudia Craig Marek
Medical Assistant
fmsnurse@aol.com
May 2005
Important: Do not assume fibromyalgia is the cause of all symptoms. When in doubt or confronted with new problems, please consult your personal physician or appropriate specialist.
Addendum:
Fibromyalgics with hypoglycemia must follow a low carbohydrate diet as prescribed, or they will not feel better, even when guaifenesin clears the lesions of fibromyalgia. Though not mandatory, fibromyalgics with carbohydrate craving will get a "jump-start" with similar dietary modifications for the first thirty days of treatment. Carbohydrates (sugars and starches) release insulin. This hormone not only induces kidney reabsorption of phosphate but also drives it into various cells and intensifies symptoms. Elimination of the following foods prevents the wide fluctuations of blood sugar that allows a surge in energy and lessens bouts of fatigue.
Foods to Avoid Strictly:
All alcohol, dried fruits, fruit juice, baked beans, refried beans, lima beans, barley, black-eyed peas (cowpeas), lentils, garbanzos, rice, bananas, pasta (all types), flour tortillas as in burritos, tamales, corn, potatoes, sweets of any kind including dextrose, glucose, hexitol, maltose, sucrose, honey, fructose, corn syrup, starch. Caffeine and alcohol are permitted for those without hypoglycemia.
Other Information:
This is not the full bibliography in support of our theory. (Interested physicians may contact us for a theoretical, more technical, paper or consult the Technical Appendix of our book)
Online Guaifenesin Support group: http://www.fibromyalgiatreatment.com/newsgroup.htm
Begoun,Paula: Don't Go to The Cosmetic Counter Without Me. Beginning Press, 1999. www.cosmeticscop.com
The American Journal of Medicine Proceedings of a Symposium: The Fibromyalgia/Fibrositis Syndrome. September 29, 1986.
The American Journal of Rheumatology: Fibromyalgia Syndrome, November 1989.
Grace Fibrosmile Salicylate Free Products. A full line of dental, personal and medicinal products: www.myfibrosmile.com/ftc or (888) 883-4276
Personal Basics by Andrea Rose. Salicylate free personal products. To order: 1-888-712-ROSE or www.andrearose.com
Starlanyl, Devin M.D. and Copeland, Mary Ellen: Fibromyalgia And Chronic Myofascial Pain Syndrome-A Survival Manual. New Harbinger Publications, Inc., 1996. Starlanyl, Devin M.D.: The Fibromyalgia Advocate. New Harbinger Publications, Inc. 1998.www.sover.net/~devstar
Williamson, Miryam Erlich: Fibromyalgia: A Comprehensive Approach. New York: Walker and Co. 1996 and The Fibromyalgia Relief Book, 213 Ideas for Improving Your Quality of Life, 1999. www.shaysnet.com/wmson
Winter, Ruth: A Consumer's Dictionary of Cosmetic Ingredients. Crown Trade Paperback, 1998. www.brainbody.com
St. Amand, MD, R. Paul and Marek, Claudia: The Use of Uricosuric Agents in Fibromyalgia: Theory, Practice and a Rebuttal to the Oregon Study of Guaifenesin Treatment. Clinical Journal of Myofascial Therapy, Vol 2, No 4, 1997.
St. Amand, MD, R. Paul and Marek, Claudia: A Description of Fibromyalgia and Hypoglycemia: Their Combined Morbidity and Therapy with Guaifenesin and Diet. AAEM Symposium Syllabus, 1998.
"What Your Doctor May Not Tell You About Fibromyalgia" (ISBN 0-446-675-121),
"What Your Doctor May Not Tell You About Pediatric Fibromyalgia" (ISBN 0-7595-5002-6),
"What Your Doctor May Not Tell You About Fibromyalgia Fatigue" (ISBN 0-466-67730-2) by R. Paul St. Amand, M.D. and Claudia Craig Marek, all published by Warner Books.
All are available in bookstores, online book sellers and from The Fibromyalgia Treatment Center.
FOR MORE INFO GO TO www.fibromyalgiatreatment.com
I have also been on an diet that's in tied with the Guai protocol but i dont eat red meat and White flour/bread as that causes my fibromyalgia pain to come on.
and i have lost an 3 stone and i have No fibrofog and i have no headaches my mind feels normal its wonderful
also i have started an exercise program an about 8 months ago Exercise is an Very Important treatment for all people with Fibromyalgia and CF'S/M.E i started on a Fibro flare up ( in other words in ex stream pain just about walking and I'm 80%better i ain't ever going to give up exercise ever again!
i walk for a hour for 7 days week
BEFORE THE treatment i could only walk about 3 Min's that's it!!
I was housebound before i started my Exercise program i could only walk
for 2Min's that's it!! i started on a fibromyalgia flare up and anyone can start exercise
it has nothing to do with how long u have had the illness at all anyone can do it!!
we have to exercise in a real different way to normal people and in the right way
i know many people that are Older then you are and have had fibromyalgia longer then you have that exercise and that are getting better cos of it
and that when our body's are exercising our body's Realise a natural pain killer within in us that eases pain no matter who we are as that's how god made us also people like me and you need to exercise slow and build it up other wise we will end up bedridden we have to exercise in a certain way different from normal people do l we get worse if we don't do any exercise as our muscles and bones will get weaker and and we will be worse off
and now i walk for One hour and 5mins a day 7 days a week we have to
exercise different to normal people we have to start slow as i did and
build it up slowly i know a few people that are in Remission though
exercise and lifestyle change flexible bodies have less pain, strong
bodies have less pain fit bodies have less pain i know a person who's on
Guai and she runs for 5 miles a day also many people who ain't on the Guai and they exercise for hours a day and they are better cos of it
if we don't use exercise we are worse of as or bodies turn into Concrete
we can use Exercise and movement to have less pain and to get better
Over coming the symptoms of FMs does not happen over night and getting better requires a complete life style change
those who have been able to overcome the FMs challenge have not done over night it will take time, patience and perseverance. but you can feel better and once you have achieved that goal you will feel that it has been worth every effort you have made.
its not uncommon to have a couple of good days and then seem to have fall back into relapse know that the frequency of your relapses will decrease with time your body will heal slowly this is also a life long maintenance program
if we go back into our old habits once we feel better the symptoms will come back it took
i started sedentary i was housebound and in exstream pain 24/7 for
over 10 years +
i started mary moellers Exercise program sraight away you dont have
fear starting an exersice program i was bedridden when i started i
couldnt even walk hardly i made my self do it!! I have wriiten down
my Jounery to wellness in this email so you can see for your self
i have also taken out Red meat and White Flour from my diet as that
causes Fibromyalgia pain aswell i do diffrent Stetching exercises i
can scan them in for you and and email them to u if you like let me
know Im here if you need to talk to me if you want the rest of the
guidelines for the program then just please email me
day 1
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 20min walk with out stopping
and then you do Stetching Exercise i can email them to you if you
like?
Day 2
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 10min walk with out stopping
and then you do Stetching Exercises
day 3
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 10min walk with out stopping
and then you do Stetching Exercises
WHEN I GOT TO MY 3RD DAY I WAS IN 25% LESS PAIN
day4
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 10min walk with out stopping
and then you do Stetching Exercises
day5
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 10min walk with out stopping
and then you do Stetching Exercises
day 6
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 10min walk with out stopping
and then you do Stetching Exercises
day 7
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 10min walk with out stopping
and then you do Stetching Exercises
On The 7 day i was NEARLY PAIN FREE ONLY MILD PAIN!!!
Day 8
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 15 min walk with out stopping
and then you do Stetching Exercises
day 9
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 10min walk with out stopping
and then you do Stetching Exercises
DAY 9 I WAS PAIN FREE ONLY MILD ACHES HERE AND THERE.
day 10
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 15min walk with out stopping
and then you do Stetching Exercises
day11
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 10min walk with out stopping
and then you do Stetching Exercises
PAIN FREE THIS DAY!!
day 12
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 15min walk with out stopping
and then you do Stetching Exercises
PAIN FREE!! THIS DAY ASWELL
Day 13
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 10min walk with out stopping
and then you do Stetching Exercises
PAIN FREE THIS DAY ASWELL
day 14
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 15min walk with out stopping
and then you do Stetching Exercises
PAIN FREE THIS DAY TOO!!! :0)
day 15
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 10min walk with out stopping
and then you do Stetching Exercises
day 16
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 15min walk with out stopping
and then you do Stetching Exercises
day 17
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 10min walk with out stopping
and then you do Stetching Exercises
day 18
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 15min walk with out stopping
and then you do Stetching Exercises
I WAS PAIN FREE !!
day 19
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 10min walk with out stopping
and then you do Stetching Exercises
I WAS PAIN FREE!!
day 20
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 15min walk with out stopping
and then you do Stetching Exercises
I WAS PAIN FREE!!
day 21
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 10min walk with out stopping
and then you do Stetching Exercises
I WAS PAIN FREE !!
day 22
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 10min walk with out stopping
and then you do Stetching Exercises
day 23
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 10min walk with out stopping
and then you do Stetching Exercises
I WAS PAIN FREE!!
day 24
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 15min walk with out stopping
and then you do Stetching Exercises
I WAS PAIN FREE
day 25
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 15min walk with out stopping
and then you do Stetching Exercises
IWAS PAIN FREE !!
day 26
what you do to start is do a 5min warm up ie do Stetching exercise
before you go for your walk
and then go for a 15min walk with out stopping
and then you do Stetching Exercises
I WAS PAIN FREE!!
JUST EMAIL ME FOR MORE INFO OR SUPPORT NICOLE
proartistuk@yahoo.co.uk Im setting up a myspace support group email me if you want to join Oh and that pain free hour u had WAS THE GUAI!! XX
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